Give Elyashiv a home for a new life
2474
shkedin and rimonim

Give Elyashiv a home for a new life

By shkedin and rimonim

Project ended

Sweet Elyashiv was born with a rare syndrome called tecpr2 and lives with his family in very limited conditions that endanger his health. In honor of the new year, we give Elyashiv an adapted home to a new life.

Our special little boy, Elyashiv, was born with TECPR2, a very rare genetic syndrome. Only 11 people in the world have been diagnosed with TECPR2 thus far; only four are still alive.
Elyashiv, only 7 years old, does not walk, does not talk, cannot swallow liquids (he must be given liquids...

Our special little boy, Elyashiv, was born with TECPR2, a very rare genetic syndrome. Only 11 people in the world have been diagnosed with TECPR2 thus far; only four are still alive.
Elyashiv, only 7 years old, does not walk, does not talk, cannot swallow liquids (he must be given liquids through a feeding tube in his stomach) and he has no sense of pain. He suffers from severe sleep apnea and must be watched 24 hours a day.
Elyashiv is our first child. When he was born we were unprepared emotionally and financially, and our home is unfit for his ever growing needs. As his condition affects the nervous system, Elyashiv cannot adjust his body temperature to the weather and needs to live in a house with better insulation. He needs wider doorways to accommodate his wheelchair, a specially built shower, a treatment room for his bed and medical equipment and, eventually, room for a caretaker.
We have spent all that we had to try and accommodate his needs, and now have no choice but to turn to you and ask for your help. Just a small donation can ensure that Elyashiv will grow up in a house that can help him survive his condition.

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Recent Donations/ Updates

  • Anonymous 18.10.2017

  • Leah Cohen 15.10.2017

  • אופיר אנגלסמן 15.10.2017

    ₪50

  • Anonymous 15.10.2017

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About this charity:

shkedin and rimonim

bet rimon
#Welfare, Poverty and People in Need #Judaism #People with disabilities #Communities

Establish and manage a synagogue in Bet Rimon.
Support for charity in Beit Rimon.
Expanding Mikve for mens in Bet Rimon .
Religious activities of informal education for children .
Establishment of the Jewish library .
A research center for studying the heritage of Israel in Galilee ....

Establish and manage a synagogue in Bet Rimon.
Support for charity in Beit Rimon.
Expanding Mikve for mens in Bet Rimon .
Religious activities of informal education for children .
Establishment of the Jewish library .
A research center for studying the heritage of Israel in Galilee .
Setting up a website to the synagogue .

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